Accessibility Guidelines for Buildings and Facilities
By: The Access Board
1-800-USA-ABLE (1-800-872-2253) or Email: info@access-board.com
This document contains scoping and technical requirements for accessibility to buildings and facilities by individuals with disabilities under the Americans with Disabilities Act (ADA) of 1990. Contains illustrations. Revised 1998.

Accessible Building Design
By: Eastern Paralyzed Veterans Association
75-20 Astoria Blvd, Jackson Heights, NY 11370
800-444-0120
Date: 1991

A booklet that presents a hypothetical accessible building and it's surrounding area. Gives ideal dimensions of parking spaces, ramps, doorways, elevators, bathrooms and assembly rooms. Large print available. 38pp.

Cost: Free

Accessible Gardening for Therapeutic Horticulture
By: Jean Larson, Anne Hancheck and Paul Vollmar
Available from: Minnesota Extension Service Distribution Center
20 Coffey Hall, 1420 Eckles Ave, St Paul, MN 55108
612-625-6281 or Email: order@extension.umn.edu Describes therapeutic horticulture and explains how people with physical limitations can make their gardents accessible using simple adaptations to the garden area, methods and equipment. 4 page fact sheet. Date: 1997 Cost: 75 cents ($1.50 min order)

Accessible Transit Traveler
Published by: Eastern Paralyzed Veterans of America
75-20 Astoria Blvd, Jackson Heights, NY 11370-1177
800-444-0120
Booklet that discusses the ADA and how it affects transportation requirements. Includes information related to public transit systems, school transportation, rail stations, private transportation as well as design standards for vehicles and fixed facilities.
Cost: Free

Acute Management of Autonomic Dysreflexia:
Adults with Spinal Cord Injury Presenting to Health Care Facilities

Published by: Paralyzed Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: February, 1997
Clinical practice guidelines developed for the care of persons with spinal cord injury who present to health care facilities with signs of autonomic dysreflexia (hyperreflexia) Summarizes methodology in establishing guidelines, treatment recommendations, and treatment overview. Includes glossary and references. 19 pages.

Cost: $10

ADA: Resource Information Guide
By: Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120
Date: 1993

A pamphlet that contains a comprehensive bibliography of books and videotapes about the ADA and the services it affects. 23pp.

Cost: No cost

ADA: Small Business Fact Sheet
Produced by: Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120
Date: 1993

A pamphlet listing the essential accessibility requirements of the ADA are concisely explained in words, photos and diagrams. 1 p. Free.

Adaptive Baby Care Equipment: Guidelines, Prototypes & Resources
By: Kris Vensand, Judith Rogers, Christi Tuleja, Anitra DeMoss
Available from: Through the Looking Glass
2198 Sixth St., Suite 100, Berkley, CA 94710
510-848-1112 or 800-644-2666
Date: 2000
 

This book includes problem-solving baby care barriers; resources for adaptive baby care equipment, and a checklist and safety guidelines.
Cost: $30.

Adaptive Parenting Equipment: Idea Book 1
By: Anita DeMoss,MA; Judith Rogers, OTR; Christi Tuleja, MS,OTR; Megan Kirsbaum, PhD
Available from: Through the Looking Glass
2198 Sixth St., Suite 100, Berkley, CA 94710
510-848-1112 or 800-644-2666
Date: 1995

This excellent resource, developed by "Through the Looking Glass" non-profit agency, has adaptive equipment ideas for a range of baby care, childcare and parenting activities for parents with a variety of physical disabilities.
Cost: $10 (consumers), $25 (professionals and general public)

Adaptive Recreation Equipment Catalog
By: Don Krebs
Access to Recreation
2509 E Thousand Oaks Blvd, Ste 4430, Thousand Oaks, CA 91362
Date: Annual
800-634-4351 Catalog of recreational equipment, including items such as electronic fishing reels, sports wheelchairs, lifts for access to a swimming pool and bowling aids. Also devices to help with embroidery and knitting, games and books, video controllers and environmental control system.

Advocacy and Supported Employment for People with Disabilities
By: Michael Barcus, Teri Blankenship, Ed Turner, Paul Wehman, and Greta Galloway, Editors
Available from: Virginia Commonwealth Univ
RRTC on Workplace Supports
PO Box 842011, Richmond, VA 23284-2011
804-827-0737 or Email: rsmartin@titan.vcu.edu
Date: 2000
A Guide and Workbook to assist people with disabilities play an active role in their job search. Included is a training video, "Today's New Workforce: An untapped labor force"
Cost: $54.99

Air Carrier Access
Produced by: Eastern Paralyzed Veterans Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
800-444-0120 or Email info@epva.org
Date: 1993

A handy guide that explains the Air Carrier Access Act and provides information about air travel for wheelchair users. 29 pages.

Cost: No cost

Air Carrier Access Act - Make It Work For You
By: Paralyzed Veterans of America
Available from: PVA Publications
PO Box 753, Walsdorf, MD 20604-0753
301-932-7834

Provides information about the law, addresses for filing complaints and a tear-out complaint form. 18 pp brochure.

Date: 1995 rev.

Cost: Free

Alcohol, Drug, and Prescription Medicine use after SCI
By: Medical College of Wisconsin Model SCI System
Froedtert Memorial Lutheran Hospital W, Rm 5292
9200 W Wisconsin Ave, Milwaukee, WI 53226
414-259-3659
Date: 1999

This booklet discusses the risks associated with using these substances either individually or together. It encourages considering the consequences of use. Includes a medication worksheet & reference page for tracking medications used and the effects of alcohol.

Cost: $2

America's Telability Media 2000-2001
By: National Telability Media Center
Available from: PO Box 1488, Columbia MO 65205-1488
573-445-7656

The nation's first disability media directory with more than 1400 mass media resources serving people with disabilities.

Cost: $40

Assistive Technology Needs-Assessment of Farmers and Ranchers with Spinal Cord Injuries, Final Report
By: Breaking New Ground Resource Center
Purdue University
1146 Agricultural Engineering Bldg., West Lafayette, IN 47907-1146
800-825-4264
Date: 1992

Reports findings of a study completed by Breaking New Ground Resource Center. A survey of farmers and ranchers with spinal-cord injuries showed their rehabilitation-technology needs.

Cost: $25

Autonomic Dysreflexia: What you should know
Published by: Paralyzed Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: September, 1997

A consumer guide for persons with SCI that tells how to spot AD's warning signs, what to do in case of an AD episode, and steps to take to prevent AD. Includes a diary, wallet card and brochure. 14 pages.

Cost: Free

Available in Spanish

Avoiding Attendants from Hell
By: June Price
Available from: Science and Humanities Press
PO Box 7151, Chesterfield, MO 63006
314-394-4950
A tell-it-like-it-is book on everything that's good, bad and ugly about personal assistance services. Includes information on taxes and withholding along with sample forms.
Cost: $16.95
Date: 1998

Barrier Free Design: The Law
By: Paralyzed Veterans Association of Florida
Published by: PVAF
6200 North Andrews Avenue, Fort Lauderdale, FL 33309
954-771-7822; 800-683-2001; FAX 954-491-3532
Date: 1995

This publication is an easy-to-read reference for accessibility laws for American National Standards Institute (ANSI) as compared to the State of Florida accessibility requirements. Also includes Title II and Title II highlights of the ADA. Excellent reference for builders, city officials, architects, interior designers and consumers who use wheelchairs.

Cost: $35.00

Basic Questions Relating to Chemical Use
By: Sharon Schaschl and Dennis Straw
Sister Kenny Institute
800 East 28th St., Station 49
Minneapolis, MN 55408-3799
612-863-5061
Date: 1991

Fact sheet which outlines questions to be explored relating to prescribed medications, street drugs and alcohol.

Cost: No cost

Benefits Management for Working with People with Disabilities: An Advocate's Manual
By: Lopez-Soto EJ, Sheldon Jr.
Available from: Greater Upstate Law Project, Inc.
80 St. Paul St, Suite 660, Rochester, NY 14604
716-454-6500
Date: 2000
A comprehensive reference book on the aspects of how work affects a person's right so Social Security, SSI, Medicaid and Medicare. Covers latest laws, regulations and policies. 174 pp.

Best 25 Catalog Resources for Making Life Easier
Making Life Easier
933 Chapel Hill Rd, Madison, WI 53711
608-274-4380; Fax: 608-274-6993
Email: help@MakingLifeEasier.com

A listing of 25 mail order companies that offer a wide array of helpful and often difficult-to-find products designed to make daily tasks easier, safer, and less frustrating.

Beyond Barriers
Available from: Blair Ferguson
800-561-2223

A catalog that lists hundreds of accessibility products. Features seven product categories: bathroom, kitchen, universal home, outdoor, leisure and fitness, pediatrics, and daily living aids.

127 pages

Brain and Spinal Cord Tumors--Hope Through Research
By: National Institute of Neurological Disorders and Stroke (NINDS)
National Institute of Health, Bethesda, MD 20892
Date: 1997
A pamphlet that discusses brain and spinal cord tumors, their causes, symptoms, how they are diagnosed, and treatment methods. Reviews research being done in this area and resources available.

Building for a Lifetime
By: Margaret Wylde
Publisher: Taunton Press
Available from: Amazon.com

From the publishers of Fine Homebuilding magazine, this book is about building houses that meet peoples's needs throughout their lives. While targeted to the builder and designer it is suited to the homeownere looking for ideas and solutions for inclusive design. 1994

ISBN 1561580368

Cost: $35.96

Care Packages: Letters to Christopher Reeve from Strangers and Other Friends
By: Dana Reeve
Date: Nov, 1999
Publisher: Random House (ISBN #0375500766)
A selection of mail received by Christopher Reeve after his SCI, arranged by themes, such as, overcoming adversity, cures & recommendations.

Caregiver's Handbook
Produced by: Caregiver Education & Support Services
San Diego County Mental Health Services, CA
619-692-8702
Editor: Robert Torres-Stanovik, LCSW
Date: 1990
A general guide for caregivers that discusses caring for the caregiver, providing personal care, nutrition, emotional well-being and legal/financial affairs.

Case Management Resource Guide
Distributed by: Center for Healthcare Information
Phone: 714-752-2335 or Email: cmrg@cmrg.com
Date: 1997
Case Management Resource Guide is a unique print and electronic healthcare directory. The Resource Guide contains over 120,000 entries covering over 40 categories of healthcare services and products including: Homecare services, Rehabilitation services, Long-term care services, Assisted living facilities, Pharmaceutical companies; and Manufacturers of homecare & assistive technology products.

(High) Chairs and Children
By: Sandie Waddell
Available from: S. Waddell, Education Resource Center
P.O. Box 1813
Whangarei, New Zealand
Date: 1992

Deals with pregnancy, childbirth, and aftercare for women with spinal cord injury. Written from personal experiences.

Cost: $10.00 US+s/h ($6.00)

Characteristics of Spinal Cord Injury and the Effects of Drug/Alcohol Use
By: Sharon Schaschl and Dennis Straw
Sister Kenny Institute
800 East 28th St., Station 49, Minneapolis, MN 55408-3799
612-863-5061
Date: 1991

Fact sheet which addresses the sociological and psychological effects on a person with spinal cord injury who abuses drugs/alcohol.

Cost: No cost

Chartbook on Women and Disability in the United States
Prepared by: Lita Jans, PhD & Susan Stoddard, PhD
Available from: InfoUse
2560 Ninth Street, Suite 216, Berkeley, CA 94710-2566
510-549-6520 or E-mail: info_use@infouse.com
A reference book on women and disability in the US population. The book is a resource for agencies, employers, organizations, policymakers, researchers and others concerned with the relationship between gender and disability. Includes charts. 1999.

Checklist for Evaluating Personal Assistance Services
By: Connie Lyle O'Brien and John O'Brien
Available from: The Center on Human Policy - Syracuse University
200 Huntington Hall, 2nd floor, Syracuse, NY 13244-2340
315-443-3851
Date: 1993

An information packet that provides information on how to evaluate an individual or service that provides personal care assistance. Looks at characteristics such as availability, comprehensiveness and participant control. 10 pp,

Cost: $2

The Child with Spinal Cord Injury
1996
By: AAOS & Shriners Hospitals for Crippled Children
Edited By: Randal R. Betz, MD, M.J. Mulcahey, MS, OTR/L
Available from: American Academy of Orthopaedic Surgeons
PO Box 75838, Chicago, IL 60675-5838
800-626-6726

This publication is the newest addition to the AAOS Symposium Series, developed jointly with the Shriners Hospitals for Crippled Children. It offers a complete, up-to-date overview of the clinical issues surrounding pediatric spinal cord injuries-etiology and demographics, prevention, treatment, rehabilitation, and areas where further research is needed. (880 pages)

Cost: $95.00

Choosing a Wheelchair
By: Gary Karp
Available from: O'Reilly Online Catalog
Date: July, 1998 - ISBN#: 1-56592-411-8
This book describes technology, options, and the selection process to help identify the chair that can provide optimal independence. Cost: $9.95, 190 pages.

Clinical Practice Guideline: Autonomic Dysreflexia
Published by: American Association of Spinal Cord Injury Nurses
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
Phone: 718-803-3782
Date: 1996

Describes the condition, clinical components of the guideline for management, the guideline-development process, and references.

Cost: $10.00 including shipping; prepaid orders only.

Compendium of Spinal Cord Injury Educational Resources
Available from: TIRR, Div of Education
1333 Moursund, D-112, Houston TX 77030
713-797-5947 or Email to: Pam Cornell
The National Database of Educational Resources on SCI contains approximately 500 specialized educational materials relating to spinal cord injury, including both audiovisual and written materials. To request a search, call or write and specify the subject area you want investigated. A printed report is mailed to you.
This print copy of the entire holdings is available for $50.

Computer and Web Resources for People With Disabilities : A Guide to Exploring Today's Assistive Technology - 3rd Edition, 2000
By: Alliance for Technology Access and Stephen Hawking
Publisher: Hunter House
Available from: Amazon.com

This newly expanded book describes how to make use of conventional and assistive technologies, and explains how to determine needs. An indispensable resource guide, it lists funding sources, government programs, publications, and technology vendors.

336 pages, ISBN 0897933001

Cost: $16.76

Computer Resources for the Disabled
Distributed by: Twin Peaks Press
PO Box 129, Vancouver, WA 9866
Phone: 360-696-3210

A book that lists souces to help one acquire, finance, fund and use computers. Many other computer resouces for the disabled are included.

Cost: $19.95 plus $3.50 s/h

Conditioning with Physical Disabilities
By: Lockette and Keyes
Published by: Rehabilitation Institute of Chicago
Education and Training Dissemination, 345 East Superior Street, Chicago, IL 60611
Phone: 312-908-6000
Date: 1995
Introduction
This book provides easy and safe exercises for people with all levels and classifications of physical disabilities. It contains step-by-step descriptions and more than 250 illustrations/pictures. Intended audience: Consumers, families, healthcare professionals.
Cost: $22.95+ $3.00 postage and handling

Consumers Guide to Disability Rights Laws
By: US Dept of Justice
Distributed by: Consumer Information Center
Pueblo, CO 81009
202-501-1794

A booklet that includes information on the ADA, the Fair Housing Act, Air Carrier Access Act, the Civil Rights of Institutionalized Persons Act, Individuals with Disabilities Education Act, the Rehabiliation Act, Architectural Barriers Act and other sources of disability rights information.

Date: October, 1996

Cost: Free

Core Curriculum for Educating Nurses in Spinal Cord Injury
By: Cynthia Kraft Fine
Magee Rehabilitation Hospital
6 Franklin Place, Philadelphia, PA 19102
215-587-3189
Date: 1991

Presents information to orient nursing staff to the appropriate management of the spinal cord injured patient in rehabilitation and in follow-up.

Cost: Contact Magee Hospital

Depression Following Spinal Cord Injury: A Clinical Practice Guideline for Primary Care Physicians
Published by: Paralyzed Veterans of America (PVA)
Consortium for Spinal Cord Medicine
Available from: PVA Distribution Center
P.O. Box 753, Waldorf, MD 20604-0753
888-860-7244
Date: August, 1998
Clinical practice guidelines discuss the assessment, diagnosis and treatment of depression in people with SCI. This covers complexity of biological, psychological and social factors that are unique to these individuals. Designed for use by primary care physicians. Includes references. 33 pages.

Cost: $10

Directory of Accessible Van Rentals
By: Helen Hecker, RN
Distributed by: The Disability Bookshop
PO Box 129, Vancouver, WA 98666-0129
360-694-2462
A directory listing accessible van rentals that are lift-equipped, or have features as raised roofs, wheelchair tie-downs, and safety harnesses for passengers. Includes companies in the US and abroad.
Date: 1997
Cost: $9.95 plus $3.50 s/h

Disability Bookshop Catalog
By: Helen Hecker, RN
Distributed by: Twin Peaks Press
PO Box 129, Vancouver, WA 98666-0129
Phone: 360-694-2462

A shop-by-mail bookstore. Stocks hard-to-find titles covering a wide range of health topics for the public on matters of interest to persons with disabilities.

Date: 1997

Cost: $4

Disability Etiquette
1997
By: Judy Cohen, Access Resources
Available from Eastern Paralyzed Veterans Association
800-444-0120

Provides pointers on how to relate to people with various disabilities.

51 pages

Cost: Free

The Disability Rights Movement: From Charity to Confrontation
By: Doris Zames Fleischer and Frieda Zames
Available from: Temple University Press
1601 N Broad St, USB 305, Philadelphia, PA 19122
800-447-1656
Based on interviews wiwth almost 100 activists, this book provides a detailed hisotry of the struggle for disability rights in the U.S. 336 pages.
Date: 2001 Cost: $24.95 paper

Dressing Tips and Clothing Resources
By: Shelly Peterman Schwarz
Making Life Easier
933 Chapel Hill Rd, Madison, WI 53711
608-274-4380; Fax: 608-274-6993
email: help@MakingLifeEasier.com

This book offers hundreds of tips and techniques to facilitate dressing. This books tells you how to find clothes that best suit you, and how to modify your garments to make them less difficult to put on and take off. You also can learn easier ways to dress yourself or another person. Plus, the resource section shows you where to locate more than 100 businesses that offer specially designed or adapted clothing for people of all ages and abilities.

Date: Updated 1997

Cost: $19.95 plus $3 postage

Easy Access Housing
By: National Easter Seal Society & Century 21 Real Estate Corp.
312-726-6200
A pamphlet that defines adaptable and accessible housing and provides a home adaptability and accessibility checklist. Also provides tips for solving common accessibility problems such as narrow doors, high thresholds and round knobs.

Family Adjustment to Spinal Cord Injury
Available from: UAB - RRTC in Secondary Complications in SCI
1717 6th Ave S, Rm 529, Birmingham, AL 35233-7330
Date: 1988
This booklet addresses some of the concerns and experiences which the family of a person with SCI may experience. It focuses on some of the initial questions and concerns loved ones may have about the injury and feelings that families experience.

Learning about Spinal Cord Injury
Available from: UAB - RRTC in Secondary Complications in SCI
619 19th St S, Rm 529, Birmingham, AL 35249-7330
Date: 1991
An easy-to-read basic overview of spinal cord injury and its management developed for use with patients and their family members. Minimal reading level is 5th grade. Provides basic information about medical, psychological, social and vocational issues. 19 pages.

Preventing Secondary Medical Complications: A guide for personal assistants to people with spinal cord injury
Available from: UAB - RRTC in Secondary Complications in SCI
619 19th St S, Rm 529, Birmingham, AL 35249-7330
Date: 1992
An easy-to-read booklet designed to help personal care assistants in working with the person with SCI in his/her daily routines. It gives the PCA instructions for giving proper health care assistance that can help prevent medical complications. A daily schedule/checklist is provided. 25 pages.

Speedway Sam
Author: Nancy Glover, MA
Available from: UAB - RRTC in Secondary Complications in SCI
1717 6th Ave S, Rm 529, Birmingham, AL 35233
Date: 1991
This book tells the story of an 8 year old boy, Sam, who receives a spinal cord injury. It explains, in a child's words, how Sam deals with this life changes after his injury. It also discusses prevention measures.